Education and Support Groups

Education and Support Groups

TransplantLiving.org also maintains a comprehensive list of support groups.  To add your support group to this page, please email us at admin@stsw.org with the listing in a format as seen below.  

Arizona

Phoenix

Monthly lung transplant support group on campus for pre and post patients and family members. Facilitated by

Kathy Lam MSW, LCSW
Social Worker, Lung Transplant Program
Heart Lung Institute
St. Joseph’s Hospital & Medical Center
500 W Thomas Rd, Suite 500
Phoenix, AZ 85013
602.406.7009 phone
602.798.0298 fax
Kathy.Lam@chw.edu

Tucson

University Medical Center
Abdominal Transplant Educational Support Group ] Meets the first Wednesday of each month, except for July and August, from 5:30pm to 7:00pm in Dining Rooms C and D. For transplant candidates and recipients, their friends, caregivers, and/or family.
Sandra Thornton, LCSW
(520)694-7365
sthornton@umcaz.edu

California

Los Angeles

Cedars-Sinai Medical Center
8700 Beverly Blvd.
Los Angeles, CA 90048

Weekly Multi-Organ Transplant Support Group
Who: Pre- and Post- Transplant, Family and/or Caregivers
When: Every Tuesday from 1:00pm – 2:30pm
Where: Cedars-Sinai Medical Center
Facilitator: 310-423-6850

Grupo De Apoyo De Transplante
Quien: Trasplante de pacientes y sus familiares
Cuando: Cada Jueves, de 10:00 a.m.- 11:00 a.m..
Adonde: Cedars-Sinai Medical Center
Facilitator: Marshia Caceres, LCSW

Weekly Multi-Organ Relaxation Group
Who: Pre- and Post- Transplant, Family and/or Caregivers
When: Every Thursday from 2:00 pm – 3:00pm
Where: Cedars-Sinai Medical Center
Facilitator: 310-423-6850

LVAD Support Group
Who: LVAD Recipients, Candidates, Family and/or Caregivers
When: Second Wednesday of the Month from 10:30am – 12:000pm
Where: Cedars-Sinai Medical Center
Facilitator: Ellen Anifantis, LCSW 310-423-6378

Keck Medical Center of USC
1500 San Pablo Street
Los Angeles, CA 90033
Transplant Patient, Family & Caregiver Support Group
1st Thursday of each month from 7 p.m. – 8:30 p.m.
Mary Fisher, LCSW 323-442-9631
Marla Frankel, LCSW 323-442-9632

Santa Clara

Kaiser Permanente: Heart transplant/LVAD patient support group that meets the 2nd Tuesday of the month from 12:00pm-1:30pm in a conference room at Kaiser Santa Clara (700 Lawrence expwy Santa Clara, Ca. 95051). Caregivers and heart failure/pre-transplant patients are welcomed. For more information, contact Janet Stevenson LCSW (office) 408-851-3762 (fax) 408-851-3872 (email) Janet.Stevenson@kp.org

Florida

Ft Meyers

The Organ Transplant Support Group meets the first Thursday of each month at Gulf Coast Medical Center
13681 Doctor’s Way, Ft. Myers, FL 33912. Website is www.organsupport.org and contact number is
877-Organ TX (674-2689). Offered by the Organ Transplant Recipients of Southwest Florida

Gainesville

Shands Adult Liver Transplant Support Group For Pre- and Post-Transplant Patients and Support People! We welcome all patients, support people, family and friends to join in this support group to discuss experiences, share resources and learn from each other.
Where: Room 9433. 9th Floor Conference Room (near elevators)
When: Every Monday. 10:30 AM – 11:30 AM
This is a drop-in group, no reservations required.
Kelli Walker, LCSW 352-265-0224
wakell@shands.ufl.edu

Hollywood

Memorial Cardiac and Vascular Institute
Memorial Regional Hospital     Memorial Hospital West               Transplant & VAD Support Group
2nd Wednesday of each month, beginning Wednesday August 13th @ 6 p.m
Esther L. Grossman Center
4320 Sheridan Street    Hollywood, Florida 33021

Jacksonville

Mayo Clinic Florida Support Groups
Tuesday: 11:00 AM -12 noon
Caregiver Support Group
Location: Mayo Clinic hospital 3-501 S
Directions: Located near the nurses station on 3 South

Tuesday: 1:30 PM – 2:30 PM
Heart/VAD Support Group
Location: Mayo Bldg. 2-903 North
Directions: Second floor of Hospital across from family waiting room.

Tuesday 1:00 pm – 3:00 pm
Lung Support Group
Location: Mayo Bldg. 02 002 North
Directions: Second floor of Mayo Bldg, get off elevators and turn right, go to first door on right – (door says 02-001 N Conference Suites). Or come up the Cannady elevators to the 2nd floor and walk through the corridor around to the room.

Thursday: 11:00 am – 12 noon
Liver/Kidney/Pancreas Second Chance Group
Location: Mayo Bldg. 03 002 N
Directions: Third floor of Mayo Bldg., get off elevators and turn right, go to first door on right – (door says 03-001 N Conference Suites)

Nancy P. Ford, LCSW
Phone 904.956.3205
E-mail: ford.nancy@mayo.edu

Illinois

Springfield

Support group for pre- and post- transplant patients at Memorial Medical Center 3rd Thursday of every odd month from 6:00 pm to 8:00 pm (January, March, May, July, September, November). Pre transplant patients that have been evaluated as well as post transplant patients are invited. Facilitator: Jobi Tabb, LSW | Transplant Social Worker | Memorial Transplant Services |Phone: 217.757.7178 | E-mail: tabb.jobi@mhsil.com

Indiana

Fort Wayne

Lutheran Hospital Transplant Center: Educational Support Group for VAD/Heart Transplant, for pre and post op, 4th Monday of every month. Quarterly Kidney Transplant Educational Support Groups in January, April, July and November. Generally limited to patients from Luther Hospital Program. Kari Troxel, MSW, LCSW, CCTSW | Transplant Social Worker | Tel: 260-435-6273 | Fax: 260-435-6279 | ktroxel@lutheran-hosp.com

Indianapolis

St. Vincent Sharing Hearts Education and Support Group meets the 3rd Thursday of each month. It is for patients and families with VADS and/or waiting for heart transplants. Facilitator: Jan Hart 317/338-2457 jlhart@stvincent.org or Marcus Reese 317-338-6634 mreese006@stvincent.org.

Iowa

Coralville

Quarterly Lung Transplant Support Group held at two sites in Iowa (opento pre and post patients)

Monthly All Organ Transplant Support Group held in Coralville IA (open to pre and post patients)

Emily Mathews
Lung and Heart Transplant Social Worker, University of Iowa Hospitals and Clinics
Ph Number: 319-353-8192 / Email: mathews@healthcare.uiowa.edu

Kentucky

Monthly support group for lung transplant patients, monthly support group for heart transplant patients, including VAD, TAH, and other MCS patients, Pre-surgery patients, post-surgery patients, caregivers, family members, and friends all welcome! Schedule varies slightly from month to month; please call or email for info about upcoming meetings. Find us on Facebook! Search for “University of Kentucky Heart Transplant / VAD Support Group” and “University of Kentucky Lung Transplant Support Group”.

Summer Davies, social worker for heart/lung transplant and mechanical circulatory support teams: office: 859.323.2557 email: summer.davies@uky.edu; Jennifer Whittaker, staff support, office: 859.323.6497 email: jmwh229@uky.edu, Jill Marion, staff support office: 859.218.1341 email: jcmari0@uky.edu

Maryland

Baltimore

Monthly “Education and Support Group” with a featured speaker and discussion – Participants are U of MD pre and post transplant patients ( and 1 guest ) including kidney, pancreas, liver, heart, lung – meets September through May, excluding December – contact Univ of MD transplant social worker for information

Bernice Wolfson MSW LCSW-C
Heart Transplant VAD & Lung Transplant
410-328-6508 / bwolfson@umm.edu

Massachusetts

Monthly Lung Transplant Support Group

Third Thursday of the month at 1PM

Blake 8 Conference Room

&

Caregiver Support group meetings

Second and Fourth Tuesdays at 1:30PM

Blake 6/Family Room

Anne P LaFleur, LICSW CCTSW

Massachusetts General Hospital

55 Fruit Street

Boston, MA 02114

617 7262609

 

Michigan

Please click here for a list of Transplant Support Groups in various cities.

 

New Jersey

New Brunswick

KAPS: Kidney and Pancreas Support Group held in the Main Conference Room of the Transplant Center at Robert Wood Johnson University Hospital – 10 Plum Street , 7th Floor, New Brunswick, NJ 08901 7:00 p.m. to 8:00 p.m. All pre and post transplant patients, and potential Donors are welcome to participate, as well as their family and friends.
Augusto da Fonseca, M.S.W., LCSW
732-253-3699
Augusto.daFonseca@rwjuh.edu

Newark

Lung Transplant  Monthly Support Group
For pre and post patients, Caregivers welcome
Newark Beth Israel Medical Center
201 Lyons Avenue
Newark, NJ 07112
Room assignment and times vary
Please contact Lauren Dispinseri, LCSW for details
973-926-3178
ldispinseri@barnabashealth.org

Lung Transplant Monthly Support Group
For lung transplant recipients only
Caregivers welcome
Newark Beth Israel Medical Center
201 Lyons Avenue
Newark, NJ 07112
Room assignment and times vary
Please contact Lauren Dispinseri, LCSW for details
973-926-3178
ldispinseri@barnabashealth.org

North Carolina

Chapel Hill

UNC Hospitals Patient and Caregiver Lung Transplant Support Group
Meets 1st, 3rd and 5th Fridays, 1-2 p.m.
Conference call participation is available
Transplant Conference Room
UNC Center for Transplant Care
101 Manning Drive
Chapel Hill, NC 27514

UNC Hospitals Patient and Caregiver VAD/Heart Transplant Support Group
Meets intermittently

Contact: Laurie McDonald, LCSW, CCTSW
Clinical Social Worker & Case Manager
UNC Center for Transplant Care
101 Manning Drive
Chapel Hill, NC 27514
Lmcdonal@unch.unc.edu
office: 919-966-6341

Greensboro

Moses Cone Hospital Monthly LVAD Support Group for patient and caregivers

Facilitated by: Jackie Brennan, MSW, LCSW
Clinical Social Worker
Advanced Heart Failure Clinic
Moses Cone Hospital
1200 North Elm Street
Greensboro, NC 27401
Office: 336-832-2718
Cell: 336-209-6807
Fax: 336-832-9293
Jackie.Brennan@ConeHealth.com

North Dakota

Fargo

Sanford Health – Kidney and Pancreas Support Group – open to pre and post-txp patients in the Sanford Health Program.

4:30-5:30pm
Sanford Broadway Medical Building
1st floor conference room
736 N. Broadway
Fargo, ND 58122

Kristen M. Fischer, MSW, LCSW, NSW-C701/234-4863
Sanford Health – Fargo
Transplant Social Worker
kristen.fischer@sanfordhealth.org

Ohio

Cincinnati

The Christ Hospital welcomes you to our monthly LVAD support group, Heart Felt. If you are considering an LVAD, currently have a VAD or are going through heart transplant evaluation, we encourage you and your family to join us to share your experiences, meet new friends and learn something new.

When: Second Monday of every month at 11:00 AM

Where: 7 South Conference Room, Main Hospital

Contact: Gayle West, LISW 513-585-1755, gayle.west@thechristhospital.com

Oklahoma

Oklahoma City

The Nazih Zuhdi Transplant Institute at Integris Baptist Medical
Center 3300 NW Expressway, Concourse Level Room F, Oklahoma City, OK
Hope Transplant Support Group (all solid organs. Web: www.txhpoe.org).
Meets the second Monday of every month 6:00 – 7:30, except May and December.
Open to pre and post transplant recipients and families.

The Nazih Zuhdi Transplant Institute at Integris Baptist Medical
Center in Oklahoma City, OK. Hepatitis C Support group.
Meets the third Thursday of each month from 6:00 – 7:00.
(405. 713-7440)@ Integris Baptist Medical Center
3300 NW Expressway, Concourse Level Rooms C and D, Oklahoma City, OK.

INTEGRIS Jim Thorpe Rehabilitation Hospital / The Nazih Zuhdi Transplant Institute at Integris Baptist Medical
LVAD Support Group.
The group meets quarterly.
Contact Susan Shepard Vanwinkle for information (405) 949-3253
3300 NW Expressway, Concourse Level Conference Rooms D & E Oklahoma City, OK.

Tulsa

Liver Transplant Support Group Meets 3rd Tuesday of each month 7:00 PM
East Side Christian Church Adult Center 1427 S. Indianapolis Avenue
Tulsa, OK (918.835-0173 or 918.369-1581)

Pennsylvania

Harrisburg

Pinnacle Health System Transplant Services at Harrisburg Hospital conducts a lively educational/support group on the first Wednesday of every month from 7pm to 8pm for kidney and/or pancreas pre and post patients, donors, and their caregivers. Each month is a new topic led by a different transplant team member-surgeons, pre, post, donor and financial coordinators, and social workers. Healthy and abundant refreshments provided. Free parking in our garage. Call for directions (717-231-8700 or toll free 1-877-778-6110) and to confirm location as we sometimes have a special event for group outside of the facilities. dtemple@pinnaclehealth.org

Hershey

Penn State Milton S. Hershey Medical Center provides a quarterly heart transplant support group, and a monthly Mechanical Circulatory Support group. Contact Info: Veronica Umbrell, LCSW Ph: 717-531-4256 or vumbrell@hmc.psu.edu

Rhode Island

Providence

Transplant Forum: Educational Series / Support Group for
Persons of all organ transplant types at Rhode Island Hospital.
Open to all folks previously transplanted or pursuing listing for transplantation or repeattrnsplantation.
Meetings are the first Tuesday evenings of the month from 6:30-8PM at Hasbro Children’s Hospital, Collis Conference Center .

Refreshments and Parking are free. No meetings in January, July and August.

Mary Buckley 401-444-8433
MBuckley1@Lifespan.org

South Carolina

Charleston

New Charleston Area Transplant Support Group
WHO: We are a grassroots group (along with MUSC) supporting each other through the experience of organ/tissue transplants. People who would like to help each other regarding the prospects of awaiting an organ/tissue, organ/tissue recipients or caregivers, along with donor family members and loved ones.
WHEN: Meets the last Tuesday of each month from 2 – 4 p.m.
WHERE: Life Care Center of Charleston at The Elms. 2600 Elms Plantation Blvd., North Charleston
MORE INFO: Carol Dolida @: 552-4038 or send an e-mail to: charlestontransplant@gmail.com

Columbus

Midlands Area Transplant Patients and families (or support person/s) Support Group
When: The 3rd Wednesday of the month 6:00- 7:30 PM
Where: The American Red Cross
2751 Bull Street, Columbia, SC
Questions/Registration: Kate Vos 803-781-6907
This monthly support group will be for any solid organ transplant recipient, and their support persons and those patients who are awaiting transplant. The focus will be emotional support and education. Refreshments will be served so registration is strongly encouraged. (OK to leave a message). There is no charge for this group.

Tennessee

The Baptist BraveHearts Support Group Meetings are held on the 2nd Tuesday bi-monthly from 9:00am-10:00am. The meetings are held for our pre- and post- transplant/VAD patients, family members and caregivers. The speakers provide attendees with related educational information and answer questions. Refreshments are provided.

Shalonda M. Campbell, LMSW

Transplant Social Worker

Baptist Heart Transplant & Mechanical Circulatory Support Center

6025 Walnut Grove, Suite 111

Memphis, TN 38120

901-226-2000 Phone

901-226-2000 Fax

Shalonda.Campbell@BMHCC.org

Texas

Austin

 

The Seton Heart Specialty Care and Transplant Center, in Austin, offers monthly educational and support groups for pre-transplant and post-transplant and their caregivers.  Monthly meetings are held on the third Thursday of the month form September – May.  LVAD Support Groups for patients and caregivers are held on a monthly basis.  A separate LVAD Caregiver Support Group is offered every 2-3 months.  Additional groups are offered in outlying areas, as needed.  Contact Leslie Goldstein at 512-681-0500, fax 512-681-0533 lgoldstein@seton.org

 

North Austin Medical Center Kidney Transplant Support Group 12221 North Mopac Austin, TX 78758 Second Thursday of every month, from 6:30 to 8:00 pm in Classroom 2A Open group for patients and family members. Contact: David M. Diehl, LCSW (512) 901-2883 / David.Diehl@stdavids.com

Dallas

Methodist Dallas Medical Center
1441 N. Beckley Ave.
Service Building Room A – 1
(214) 947-4414

Transplant Education and Support Meeting
Second Monday of Every Month
6:30 – 8:00pm
Room A-1

Parking available in the Service Building Parking Lot H at Colorado and Bishop. Press button at gate for attendant and let them know you are here for the transplant meeting.

Bridget Lam LMSW
214-947-1803
Po-lingLam@mhd.com

Houston

Memorial Hermann Transplant Support Group
Second Tuesday of each month from 6:00pm to 7:30pm at Palmer Memorial Church:
6211 Main Street, Houston, TX 77030
If you have questions, please call: 713-704-5744/6803/3885
Facilitated by Gloria Chen, LMSW, Floyd Johnson, LCSW, Penelope Loughhead, LCSW, CCTSW

Virginia

Norfolk

Taking Heart-Heart Transplant/LVAD Support Group
Sentara Heart Hospital/Sentara Norfolk General Hospital
600 Gresham Drive, Norfolk, VA 23507
Meets every second Tuesday of the Month from 10:00 am – 12:00pm
Psychoeducational group with various speakers from multiple discliplines dedicated to patients who have been transplanted or are waiting for transplant, their families, and caregivers.  This group serves the entire Hampton Roads/Tidewater Section of Virginia and Northeastern North Carolina.
Venitta R. Johnson MSW, LCSW-LVAD, Heart, Kidney, Pancreas, and Living Donor Social Worker-(757) 388-9104-Email address: vrjohns1@sentara.com

https://facebook.com/HeartTransplantPeerSupport

Taking_Heart@aol.com

 

Washington

Seattle

University of Washington Medical Center
Pre and Post Lung Transplant Support Group
Second Tuesday of each month, 12:30-2:00
Plaza Cafe Conference Rooms B/C
Contact: Angela Wagner, LICSW
206-598-2676
wagnera@u.washington.edu

Solid Organ Transplant Caregiver’s Support Group
Fourth Wednesday of each month, 12:30-2:00
Plaza Cafe Conference Rooms B/C
Contact: Angela Wagner, LICSW
206-598-2676
wagnera@u.washington.edu

Wisconsin

Appleton

St. Elizabeth’s Hospital
North East Transplant Support (NETS)
Meets 2nd Wednesday of each month, 7:00pm
Linda Ourada (920.731.8845)

Madison

Transplant Support Group
UWHC, 600 Highland Ave
Meets the 3rd Saturday of each month, 1:00pm-3:00pm
Deborah Daniel (608.262.8915)

Marshfield

Central Wisconsin Area Second Chance for Life
Meets monthly, call for schedule
Leah Breu, RN (715.389.3677)

Milwaukee

3rd Wednesday of each month, 6pm-8pm
Froedert, 9200 W. Wisconsin Ave., Conference Room E, Family Center
414.805.3666 or 800.272.3666
St. Luke’s
3rd Tuesday of every month from 6:30 p.m. – 8:30 p.m.
414.646.5410

Onalaska

Coulee Region Transplant Support Group
Franciscan Skemp Healthcare
Lower level conference room of Franciscan Skemp’s Onalaska Clinic, 191
Theater Road
1st Tuesday of the month at 5:30pm
608.782.2560

Viroqua

Vernon Memorial Hospital Heart Center Support Group
3rd Wednesday of each month, 1-3pm
608.637.4497

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